My Friends

[mnmkeller]

That's great news. I'm curious about what this mystery condition is though.

Information

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[Aragorn243]

I don't think they know which is why they sent it off to John's Hopkins. I think but am not sure they did the same thing 13 years ago and we never found out then. She is healthy and doesn't have liver function issues.

[Jonzie]

Good to hear will keep praying

[dman69]

Good to hear. Hoping the next round of treatment has the desired effect. Thinking of you both, with all the best wishes.

[Aragorn243]

We are both ready for something positive to happen here. It is amazing how fast this thing is growing I'd say about a centimeter a month which is why I did not like the delay. It also started making the skin on her breast red where it was located but that did diminish somewhat after her checkup yesterday so it could be partially psychosomatic. The doctor seems to think they will be able to shrink it considerably. Surgery will be in late September if all goes to plan.

[Aragorn243]

The first chemo session is complete. She did very well. Did not and has not yet gotten sick. They have her pretty high on Benadryl so she's sleepy. We're going to get turkey dinners later so we'll see how that goes.

[HOOKED ON HISTORY]

Great to hear good news.

[Aragorn243]

Now we have another problem, not sure how serious it is. She has taste issues. But they aren't following the expected norms. So she doesn't want to eat but has to eat for strength. She was fine the first day but the second this just kind of came out of nowhere. She resorted to having me eat stuff she couldn't to see if I thought it tasted bad.

Normally it tastes like metal or cardboard but she says it tastes like neither of those.

Hopefully this will either pass or shel'll get used to it.

[Bob Womack]

Meds do funky stuff to you. I'm on a combination, primarily for plaque psoriasis, that leaves me sitting at the table, scratching my head, having no desire to eat, even as my stomach growls. At lunch time at work I can't for the life of me figure out where to go for lunch. I just have to eat the amount required to keep me alive.

You have to think in terms of hiking or strong physical exercise. When I've spent the day on a long mountain hike I often find myself completely unable to face the food I planned for myself and often must use another day's ration.

At breakfast sometimes eggs make me nauseated but cereal (sweetened with Splenda) beckons. I have to eat the eggs anyway because they are a protein source and as a diabetic I can't eat carbs without protein to slow the release of calories.

Find a path that she can tolerate and we'll keep praying.

Bob

[mnmkeller]

If food is bland it makes it hard to eat. You may have to experiment to find what she can taste and enjoy.

Imagine the worst sinus drainage you've had where your tongue is coated...then it's worse than that.